Team Lola | Stay Strong. Stay Brave. Team Lola – Stay Strong. Stay Brave.
Home Welcome

Welcome


02-00_555776_617472658316133_824990817_n
Lola is our beautiful and bright 13 year-old daughter who was born with a very rare congenital heart defect called “Ebstein’s Anomaly.” We created this page to fill it up with the hearts, love and support of those close to her, as well as those who may not know her – but wish they did. She is a spectacular girl deserving of every ounce of support and encouragement she can get. We’ve surrounded her with support and love, and have kept her strong and brave (some times we wonder if it’s the other way around).

Ebstein’s anomaly is a rare heart defect that’s present at birth (congenital). In Ebstein’s anomaly, your tricuspid valve — the valve between the chambers on the right side of your heart — doesn’t work properly. Blood leaks back through the valve, making your heart work less efficiently. Ebstein’s anomaly may also lead to enlargement of the heart or heart failure.Ebstein anomaly accounts for less than 1% of congenital heart diseases and occurs in 1 in 210,000 live births. The condition occurs with equal frequency in males and females; severely affected neonates can present on their day of birth.

Lola underwent surgery at Rochester, MN’s Mayo Clinic. Dr. Joseph Dearani, her cardiovascular surgeon, performed surgery on November 6th, 2013. Her surgery included Tricuspid Valve repair, close an Atrial Septum Defect, Right Ventricle plication, reduce the Right Atrium and a Bidirectional Glenn Shunt.Lola has requested we keep this page open and help her get her story across, so that she can help others with ebstein’s anomaly, and other personal challenges, who need inspiration and strength to overcome life’s difficult challenges.

I want to inspire other people and let them know that no matter what is going on in their lives, even if it’s something as difficult as this, there is always something positive that comes with it.  Sometimes, you just have to look harder.

~ Lola

Google+